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SIP 2017 - Key Statement

Souzi Makri – European Network of Fibromyalgia Associations, Cyprus

"Cooperation between all stakeholders is pivotal for the wellbeing of the patient!"

Souzi Makri
ENFA (European Network of Fibromyalgia Associations)

Souzi Makri has been working as volunteer with the Cyprus League Against Rheumatism (CYPLAR) since 2008 and she is currently the Executive Secretary of the Central Committee and the coordinator of the Limassol office (her home town). As a volunteer, she is one of the trainers the of the ‘’self-management‘’ workshop. As a member of the volunteers’ force, Souzi is actively involved in organizing events, conferences, and various other activities for fund raising.

Souzi has been trained as a Patient Research Partner by EULAR and she has become a EUPATI Fellow, after completing a 14-month course in the research and Development of medicines. As a patients advocate she is a on the list of Expert Patients of the EMA.

Souzi has been elected Chair of AGORA (Platform) Organization for representing people with Rheumatic diseases in Southern Europe) in September 2011. Since January 2015, she is the President of ENFA (European Network of Fibromyalgia Associations).

Souzi has a BA degree in Economics and has completed two one- year courses at the Open University UK, in the field of Psychology.