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International Cluster Headache Day 2020

Elena Ruiz Perez – EMHA, Belgium

It usually takes 5 years for Cluster Headache (CH) patients to get a correct diagnosis. Healthcare professionals have little knowledge about Cluster Headache, causes and triggers. For a patient to have access to their treatments are not easy.

Therefore European Migraine and Headache Alliance (EMHA) has initiated a social media campaign to raise awareness about the unmet needs of patients with Cluster Headache on the international CH Day on the 21st of March 2020.

EMHA requests: Let’s shorten de #5YearsForADiagnosis time by sharing #ClusterHeadacheDay

Read also about the project on Cluster Headache which has won the EU Civic Chronic Prize on Chronic pain at SIP 2017 for the category PATIENTS’ EMPOWERMENT (Good Practice number 21) "At lessons from the expert patients: advices for the physicians to improve their care of cluster headache patients" from the Alleanza Cefalalgici Cluster, European Headache Alliance, Italy. The aim of this project was to collect a list of recommendations from CH expert patients (EP) for the physicians engaged in the CH management, with the purpose to improve their ability in taking care of CH patients.

 

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