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Incorporating the Lived Experience of Pain into the Study of Pain


The mission of the International Association for the Study of Pain (IASP) is “to stimulate and support the study of pain and to translate that knowledge into improved pain relief worldwide”.  This mission has largely been pursued by dedicated scientists and clinicians around the world, but has yet to be completed.

The IASP Global Alliance of Pain Patient Advocates (GAPPA) is working on the topic how to incorporate the lived experience of pain by patients into the Study of Pain. GAPPA’s vision is to work together to improve the lives of people affected by pain through effective and equitable integration of the lived pain experience into all aspects of pain research, management, education, and advocacy, across the world, for all people.

What can be done to make this happen?

The co-chairs of the Global Alliance of Pain Patient Advocates (GAPPA), Blair Smith (UK) and Joletta Belton (USA) recently wrote an op-ed discussing a new initiative aiming to advance pain research and care by incorporating the perspectives of people who have lived with or have been affected by pain. 

"Those who have lived with pain or cared for someone in pain provide valuable insights into the experience of pain and into living well with or recovering from pain. We can’t gain these insights from anywhere else. They are essential in determining the most appropriate management approaches, and even more so in targeting priorities for research, designing effective studies, and implementing research into health care practice", say Smith and Belton. 

Read the full op-ed on RELIEF, the sister site to IASP's Pain Research Forum, that brings the latest scientific developments into simple language for the understanding of patients and the wider public, by clicking here

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