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SIP congratulates Brain, Mind & Pain on the new Book of Evidence released for the 2019-2024 mandate

Camilla Randazzo

SIP congratulates Brain, Mind & Pain on the new Book of Evidence released for the 2019-2024 mandate

"Over 220 million people in the EU suffer from neurological disorders; over 150 million people live with chronic pain.” What a great introductory to the release of the Book of Evidence (BoE) 2019-2024 mandate published by Brain, Mind & Pain Interest Group (BMP).

The statistic is great because unites latest scientific information from the European Brain Council (2017) with information from the Societal Impact Pain (SIP) Framing Paper (2018), thereby reviving the united mission that BMP and SIP are the forefront of EU initiatives to improve pain management for all our 513 million European citizens.

Nevertheless, the BoE delivers much more than just a statistic. The document sets a strategic vision on policy action to improve care for European citizens dealing with neurological disorders and chronic pain disorders. It outlines focus areas and proposes recommendations for policy action. Furthermore, it serves as a core policy document to Members of the European Parliament (MEPs) endorsing the BMP Interest Group in the 2019-2024 mandate.

Who is behind the BMP interest group?

The European Federation of Neurological Associations (EFNA) and Pain Alliance Europe (PAE) coordinate the Interest Group. The Interest Group is endorsed and supported by many organisations as well as the European Commission. The SIP Partner - European Pain Federation EFIC, the European Academy of Neurology, the European Alliance for Patient Access, the European Brain Council, European Patients’ Forum contributed to the BoE. The BoE is therefore a joint collaboration involving EU and national stakeholders – from patient, policy to industry and scientific communities.

What is the BMP interest group proposing?

Three major themes for the 2019-2024 mandate are proposed by BMP:

  1. Eradicate stigma, isolation and discrimination
  2. Ensure equitable access to treatment, service and support
  3. Promote patient empowerment and involvement

While one after another, EU Member States announces digital innovations aiming at establishing interoperable and secure structures for data exchange between research and care providers, patients also need to be involved in research, medical and policy issues. As globally non-communicable diseases gain more attention, the BoE argues, and SIP agrees, that patient empowerment and involvement is the way to go for the 2019-2024 mandate.  

What is SIP doing?

The SIP platform, which has been endorsed by over 300 organisations, has proposed similar calls for policy change in its Joint Statement back in 2018. We think that policy change in the field of chronic diseases is driven by clear and straightforward statements founded on a scientific basis to open up policy discussion. We therefore call on all our endorsing MEPs to use these straightforward statements whenever possible.

We furthermore thank all our members for supporting our mission and for spreading awareness to chronic pain in the EU.

References:

  1. Brain, Mind & Pain, Book of Evidence: 2019-2024 mandate. (2019)
  2. European Brain Council, Value of Treatment for Brain Disorders. (2017)
  3. Societal Impact of Pain, Thematic Network on the Societal Impact of Pain Framing Paper, 2018
  4. Societal Impact of Pain, Thematic Network on the Societal Impact of Pain Joint Statement, 2018 
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