Smart Healthy Age Friendly Environments (TN SHAFE) is one of the two other Thematic Networks 2018, coordinated by Cáritas Coimbra and AFEdemy and assigned by the European Commission (DG SANTE). TN SHAFE is presenting an online survey, which is an essential part of the Thematic Network 2018 SHAFE. The focus of SHAFE in 2018 is on people with chronic diseases and impairments and the use of eHealth and mHealth. Ideas/projects on how to achieve better quality for less investment are expected. SHAFE will recommend on funding and policy measures of the European Union to enhance technological development and building industry for smart environments through the presentation of a Joint Statement in November 2018. The questionnaire is open until June 30th and will take about 10-15 minutes of your time. You can join the survey here  – where you will be asked to choose one category and this will link you to the appropriate questionnaire. The summary of the survey will be published on the Thematic Network SHAFE Website and on the European Commission’s Health Policy Platform.  

Join the survey of Smart Healthy Age Friendly Environments u…

Smart Healthy Age Friendly Environments (TN SHAFE) is one of the two other Thematic Networks 2018, coordinated by Cáritas Coimbra and AFEdemy and assi…

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The German Pain Society e.V claims that the aim of pain research should be the therapeutical needs of the patients. With its recently published agenda "The perspective of Pain Research Germany", the specialist society wants to set a new course for the research of pain: it should help to better connect researchers in various fields of expertise and to focus the scientific studies on the patient's perspective. New findings are expected to be fast implemented in treatment practice. After two science meetings in 2015 and 2016 as well as the intensive work of more than 70 pain experts from the society, the Specialists are now presenting their research agenda. One of the main questions is, for example, how to transfer the knowledge from basic research with cell and animal experiments more quickly into practice. The president of the Pain Society summarised that application-based basic research that has a focus on the patient, connecting of researchers, research funding, supply research and the establishment of a pain register are more than mere demands of our agenda. It is a roadmap that shows how to build networked structures and thus improve the supply of pain patients in the medium and long term. The German Pain society is and endorser of SIP and you can learn more about them on our Endorsers page. You can read the full research agenda in German here.

German Pain Society submits a research agenda

The German Pain Society e.V claims that the aim of pain research should be the therapeutical needs of the patients. With its recently publis…

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On May 31st, the French Society for the Study and Management of Pain (SFETD) and the pharmaceutical company Grünenthal have launched the national Societal Impact of Pain (SIP) platform in France. Many healthcare professionals participated in this meeting with the title “From a journey of wandering to a course of care”. You can find more information in French on the website of SFETD.

Launch of SIP in France!

On May 31st, the French Society for the Study and Management of Pain (SFETD) and the pharmaceutical company Grünenthal have launched the national Soci…

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Gout is the most common form of inflammatory arthritis in Europe, yet awareness of it is relatively low. Existing data indicates that Gout is a very painful disease which has a significant impact on patients’ lives. Thus, a European online survey has been designed together with patient and clinical experts to give people with gout a voice. The survey has been launched at the EULAR 2018 congress in Amsterdam together with several patient organisations. The results will be shared and communicated in November 2018. The Survey can be opened here. The flyer to the survey can be found on our media page.

Launch of the Patient Voice in Gout survey at EULAR 2018 in …

Gout is the most common form of inflammatory arthritis in Europe, yet awareness of it is relatively low. Existing data indicates that Gout is a very p…

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The European Commission invites for the first Webinar on June 25th on the SIP Thematic Network. All SIP endorser are invited to contribute to the discussions on the Joint Statement and the related Framing document.

Join the 1st Webinar on the SIP Thematic Network!

The European Commission invites for the first Webinar on June 25th on the SIP Thematic Network. All SIP endorser are invited to contribute to the disc…

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Dr. Saskia Decuman, ergotherapist and expert from the Belgium Institute for Public Sickness Insurance and Handicaps (RIZIV), has been convinced of the benefits to reintegrate people with chronic pain into work for a long time. It is now time for recommendations to be transposed into policy guidelines. The Knowledge Centre of the RIZIV, led by Dr. Saskia Decuman, has been working closely with the international multi-stakeholder platform SIP (Societal Impact of Pain) for a long time. In this way, the centre seeks to bring the results of the re-integration of people with chronic pain into concrete input into the society and provide its expertise to the SIP platform. The full publication can be found here.

How to reintegrate people with chronic pain into society by …

Dr. Saskia Decuman, ergotherapist and expert from the Belgium Institute for Public Sickness Insurance and Handicaps (RIZIV), has been convinced of the…

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On April 01, 2018 a research project with the name IMI-PainCare was launched by a consortium from academia, small and medium-sized enterprises (SMEs), pain societies, patient organisations and companies from the pharmaceutical industry.

Public-private partnership tackles major challenges in pain care

On April 01, 2018 a research project with the name IMI-PainCare was launched by a consortium from academia, small and medium-sized enterprises (SMEs),…

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A Jury composed exclusively of patients and patients’ representatives ensures that the winning project(s) really represent the most valuable solution(s) for the patients, from a patient perspective. The winners of the Brain, Mind, and Pain Grant will be announced in a ceremony after the MEP Interest Group on Brain Mind and Pain’s Meeting in the EU Parliament on June 20th. Read more about the BMP patient-centered innovation Grant here.  

BMP Patient-Centred Innovation Grant – the winner(s) will be…

A Jury composed exclusively of patients and patients’ representatives ensures that the winning project(s) really represent the most valuable solution(…

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The challenge of migraine as an unexplained disease means that it is difficult to treat due to a variety of reasons including scientific, social, financial, and political. The mission of the Headache and Migraine Policy Forum is to advance public policies and practices that promote accelerated innovation and improved treatments for people suffering from headache and migraine by: Encouraging the advancement of headache science and innovation Supporting the education of patients, healthcare providers, and other stakeholders about policy issues that impact access to new and existing therapies Highlighting the need for improved, multimodal means of preventing and treating headache and migraine Furthering access to appropriate prevention and treatment options for all patients Click here for more info on AfPA’s (Alliance for Patient Access) Headache and Migraine Policy Forum.   

AfPA launches Headache and Migraine Policy Forum

The challenge of migraine as an unexplained disease means that it is difficult to treat due to a variety of reasons including scientific, social, fina…

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Thanks to all of you who have taken part in and shared our Young People's survey so far. We have had a fantastic response but hope to hear from more of you. The survey is available in eight languages and takes just seven minutes to complete. Closing is on May 21st! Our objective  is to gain an understanding of the biggest issues affecting participants in their daily lives and also to learn about their relationships with and opinion of patient groups. Information gathered from this survey will be used in the development of EFNA’s future workplans, ensuring that they and their member organisations are working in the best interests of those they represent. Please help us to disseminate the survey by sharing it with your network – via email, newsletters and social media – and encourage others to do the same! Click here for more information, including a news release and language links.

EFNA survey of young Europeans with neurologial conditions

Thanks to all of you who have taken part in and shared our Young People's survey so far. We have had a fantastic response but hope to hear from more o…

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