Launched at the end of 2018, the third edition of PAE Surveys on Chronic Pain deals with the different facets of stigma that affect the pain patients – at the healthcare provider, at work, in everyday life and at all social levels.
Besides the harmful effects on the patients themselves, the stigma related to pain manifestations and impact and the invisible nature of the disease constitute a real barrier to a significant and efficient treatment of chronic pain.
Translated in 16 languages, the survey intends to produce patient-related data to illustrate the invisible difficulties that pain patients meet and to raise awareness of the effects the entire society’s attitudes at different levels of interaction generate on pain patients.
PAE’s team and volunteers are continuously working on extending the outreach of this project to increase participation for a better relevance of data.  We hereby invite all patient organisations, healthcare professionals and other SIP stakeholders to contribute by sharing the links to the survey with their respective members and contacts concerned with pain.
The Pain and Stigma Survey will be open until the 1st March 2019.
You can take the Survey here

PAE Survey on Pain & Stigma - open until 1st March 2019

Launched at the end of 2018, the third edition of PAE Surveys on Chronic Pain deals with the different facets of stigma that affect the pain patients …

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Interview with Ingrid Keller as a contribution from DG SANTE to the newsletter of the “Societal Impact of Pain” Platform.

Interview with Ingrid Keller about the relevance of Thematic…

Interview with Ingrid Keller as a contribution from DG SANTE to the newsletter of the “Societal Impact of Pain” Platform.…

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John F. Ryan, Director Public Health, Country Knowledge and Crisis Management about SIP Thematic Network.

Feedback from European Commission about SIP Thematic Network

John F. Ryan, Director Public Health, Country Knowledge and Crisis Management about SIP Thematic Network.…

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Read the interview with Ingrid Keller and watch the Video with John F. Ryan from the European Commission to understand what is the relevance of Thematic Networks on the EU Health Policy Platform and what have been the achievements from the SIP group in 2018.
 

Closing of 2018 Thematic Networks - What's next?

Read the interview with Ingrid Keller and watch the Video with John F. Ryan from the European Commission to understand what is the relevance of Themat…

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The first SIP Spain Pain Forum was organized by the Spanish Society of Pain (SED), representing the European Pain Federation (EFIC), the Spanish Society of Health Managers (SEDISA) and Pain Alliance Europe (PAE), with the collaboration of Active Citizen Network (ACN) and Grünenthal, following the line of work of its European counterpart.

Fantastic work of SIP national platforms – sharing best prac…

The first SIP Spain Pain Forum was organized by the Spanish Society of Pain (SED), representing the European Pain Federation (EFIC), the Spanish Socie…

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Many international and national SIP related conferences and events can be found in our SIP calendar. Please ensure that your events are included and stay informed what is happening in the pain area.

SIP related Events 2019

Many international and national SIP related conferences and events can be found in our SIP calendar. Please ensure that your events are included and s…

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On 22 January the SIP Partners (EFIC, PAE, ACN and Grünenthal) met to reflect on the achievements in 2018 and to discuss the strategy for 2019 in more detail.
The two-level strategy, endorsed in November 2018 at the SIP Steering Committee [ADD LINK to article on this on the website], focuses on both the EU level activities and national SIP platforms.
Communications
For the overarching communications strategy, we have decided on the following:

continued strategic use of twitter [link to twitter handle] with quality content and graphics
increased knowledge sharing through the newly restructures website (now available in several languages [ADD LINK]
more content from SIP members in the monthly newsletter

EU engagement
On the EU level, engaging with the European institutions and making the most of the changing political landscape following the 2019 European Parliamentary elections is the goal. To achieve this, engaging with key future and current MEPs such as the Spitzenkandidaten through endorsing the Joint Statement’s messages is essential. National SIPs are encouraged to engage with highly promising candidates.
We plan to engage with key officials from the European Commission’s DG RTD, DG SANTE and DG EMPL to maintain and deepen the relationships we built as the Thematic Network in 2018 [ADD link SIP website article on thematic network].
The basis of the engagement will be the work done within the framework of the Thematic Network (i.e., the Joint Statement) and achieve concrete policy outcomes.  We want to especially understand and try to influence the next Commission’s working programme to include concrete actions on pain. The cooperation with CHRODIS+ “Employment in the Multi-Morbidity Chronic Care Model" Expert meeting will continue this year. In any case, leveraging on all four topics of the Joint Statement with all policymakers as much as possible is the goal.
National engagement
The focus for national SIPs is to further support the growth of national platforms through:

a toolkit
a video highlighting the societal impact of pain
the set-up of a buddy programme for national SIPs. In addition, the replication the survey on the status of the national pain plans will be rolled out.

To support you, we will host a SIP session focused on advocacy and introducing the advocacy toolkit we will develop this year for national SIP’s at the EFIC Congress 2019 on 4-7 September in Valencia, Spain [add website]. More information will be provided via email/on the newsletter/website. The final advocacy toolkit will be presented at the next SIP meeting. More information to come!

10th Anniversary of Societal Impact of Pain (SIP) – What´s h…

On 22 January the SIP Partners (EFIC, PAE, ACN and Grünenthal) met to reflect on the achievements in 2018 and to discuss the strategy for 2019 in more…

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Pain affects almost 20% of the French Population and as such it can be a heavy burden and a source of handicap. However, the management of pain patients is often inadequate and insufficient. Improving the course of pain care is a real public health issue for all the territories in France.

SIP France Regional Round Table

Pain affects almost 20% of the French Population and as such it can be a heavy burden and a source of handicap. However, the management of pain patien…

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Chronic pain is a huge problem - in the Netherlands alone, no less than 2.2 million people suffer from this condition, incurring costs of up to 20 billion euros. Kris Vissers, Professor of Anaesthesiology, and Michiel Reneman, Professor of Rehabilitation, both co-chairmen of ‘Pijn Alliantie in Nederland’ (Pain Alliance in Netherlands, PAIN), an association of patient organisations and pain working groups, and Ilona Thomassen, chairwoman of ‘Pijnpatiënten Naar Eén Stem’ (One Voice for Pain Patients), explain why chronic pain deserves to get more attention.

Taking an action together against chronic pain

Chronic pain is a huge problem - in the Netherlands alone, no less than 2.2 million people suffer from this condition, incurring costs of up to 20 bil…

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In 2019 the Societal Impact of Pain (SIP) platform will continue to engage both on European and national level, focusing on the following policy hooks, which are also included in the SIP Thematic Network Joint Statement:

Pain as a healthcare indicator
Research on pain
Pain education on healthcare professionals, patients and society
Pain as a factor in employment

In 2018 the Societal Impact of Pain (SIP) focused on establishing activities at a national level.  
Some countries identified key stakeholders representing the SIP partners who initiated and drove national SIP platforms. Based on a common strategy, the international SIP partners helped them shape up their national compaigns. In 2019, we will continue to support the work of the existing national SIP platforms and to provide guidance how to set up new platforms.
Read about the achievements of the National SIP Platforms in the past year.

What is the SIP Strategy in 2019?

In 2019 the Societal Impact of Pain (SIP) platform will continue to engage both on European and national level, focusing on the following policy hooks…

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