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EFNA survey of young Europeans with neurological conditions

European Federation of Neurological Associations, Belgium

To celebrate the World Brain Day on July 22nd The European Federation of Neurological Associations (EFNA) has published a report of findings from the recent Survey of Young Europeans with Neurological Conditions.

The aim of the survey was to help understand which are the biggest issues affecting the daily life of the participants and to learn about their relationships with patient groups.

Between March 12th and May 15th 2018, 1368 responses to the survey were received from 39 countries. Almost 80% of the respondents were female, with the majority of the responses coming from the below disease areas:

  • Multiple Sclerosis
  • Myalgic Encephalomyelitis
  • Chronic Pain
  • Migraine

The top concern cited by respondents was ‘access to medication/treatment’, followed closely by ‘isolation’ and ‘stigma’. This isolation and stigma could be attributed to the lack of public understanding of brain disorders. Overall, respondents rated understanding of both brain disorders and their own conditions at 2.5/10. A lack of understanding was also clearly shown amongst family, friends and employers.

Read also the full report of the survey.

EFNA encourages you to share your #BrainLifeGoals on social media to increase awareness of the issues faced every day.

  1. Societal Impact of Pain (SIP)
  2. EFNA survey of young Europeans with neurological conditions