2014: Chronic Pain - making the invisible visible

European collection of good practices

Project duration: from June to December 2014

The booklet comprises a European collection of good practices of chronic pain management, as recognized by Active Citizenship Network. In particular, the research allows us to give continuity - expanding it with some specificity – to the investigation for good practices in the struggle against pain started by ACN - in co-operation with PAE - in 2012-2013.

The aims of the project are:

  1. To keep attention focused on chronic pain as a health priority locally, nationally, and at the EU level;

  2. To encourage the exchange of experiences between professionals and patients' associations;

  3. To raise awareness among institutions about the need to identify chronic pain as a priority in health policies and programs at EU and national levels;

  4. To create a body of evidence that can be used to support the expansion of programs tailored to the care and treatment of patients with chronic pain;

  5. Raise awareness about the technological advances and their impact of the care and treatment of chronic pain – how the improvement of lives for those with chronic pain.

More information on the project you will find at the ACN Project Website.

Here you will find the complete ACN collection booklet.

2014: Pain Patient Pathway Recommendations

Report Patient's Right to avoid unnecessary suffering and pain in Europetl_files/redakteur-bereich/Press/Logo_221_EU Pain Patient Pathways Recommendations.jpg

The Partnership, concisting of PAE (Pain Alliance Europe), ACN (Active Citizenship Network) and Grünenthal held a civic survey with the goal to identify guidelines and recommendations against pain on national and European level, starting from patients' experiences. The civic survey is a first attempt in which a widespread coalition of patients and citizen organizations represents the point of view of patients in the European policies on pain. The first deals primarily with chronic pain and the right not to suffer, the second, more generally, with health policies and the protection of patients.

More information can be found in the Report and Presentation on the Patient's Right to avoid Unnecessary Suffering and Pain.

The political framework of the project is designed by PAE representing the patients’ voice in Europe, ACN will be responsible for the scientific design, methodology and contents. The pharmaceutical company Grünenthal will be responsible for financial and non-financial support.

2013: "Painful Truth" survey on chronic pain treatments

The survey "The Painful Truth Survey: The State of Pain Management in Europe", shows that treatments are failing. This survey under more than 1,000 chronic pain sufferers across Europe, was sponsored by the Boston Scientific Corportation.

Results show that treatments across Europe are failing sufferers

The Boston Scientific Corporation (NYSE:BSX) sponsored a survey under more than 1,000 chronic pain sufferers across Europe. The survey called "The Painful Truth Survey: The State of Pain Management in Europe" was supported by three organizations; Action in Pain UK, the Spanish Pain Association (EFHRE Sine Dolore) and the German Pain League (Deutsche Schmerzliga). Key results of this survey are that millions of patients continue to suffer on a daily basis, even after trying several treatment options. More than a third of sufferers still struggle with daily tasts affecting their work, personal lives, relationships and the ability to care for their children.

In Europe, chronic pain is one of the most common conditions for which people seek medical attention. About a third of sufferers indicate their chronic pain has lowered their household income by about 31% (averaging €5,000 annually), chronic pain costs the European healthcare system €300 billion a year. An estimated 90% of this can be attributed to indirect costs such as lost productivity, social security and welfare payments.

The organizations involved with the Painful Truth Survey call for governments in Europe to develop national plans for chronic pain management that go beyond the traditional diagnosis and treatment routes. Another point of improvement is better access to innovative treatment options that may not only benefit patients, but also health economies through demonstrated cost effectiveness.

For more information on the opinions of the three supporting organizations on the results of this survey, please have a look into the official article.

Here you can find the full The Painful Truth Survey.

2013: New brochure on Pain Alliance Europe

Check this new brochure to find out more about chronic pain and about Pain Alliance Europe (PAE), the European umbrella association which brings together 28 national chronic pain associations.

Dec 2012: New Publication on Chronic Diseases in th EU

Chronic Diseases in the EU: The Prevalence and Health Cost Implications of Chronic Pain

December 2012. Following the first public presentation of the original systematic literature report on the "Reflection process on chronic diseases in the EU - The role of chronic pain" during SIP 2012, the scientific paper by R. M. Leadley et al. was now accepted and published by the Journal of Pain and Palliative Care Pharmacotherapy. Please follow the link to the journal's website. 

2012: New Publication - EPPOSI CCM White Paper

EPPOSI White Paper on a Chronic Conditions Model - chronic pain included!

The independent, not‐for‐profit, partnership-based and multi‐stakeholder think tank EPPOSI just published a White Paper on “Building a Workable Model for the Holistic Management of Chronic Conditions in Europe”.

While EPPOSI has been endorsing the symposia SIP 2011 and SIP 2012, the SIP-Platform and SIP Endorsing Organisations have supported the development of the White Paper during the past two years, including the demand for the recognition of Chronic Pain “… as an essential part of European and national policy-making on chronic conditions and diseases and as a health state to be treated as a disease in its own right.” 

Read the full EPPOSI CCM White Paper.

2012: New EU Partnership on Pain Patient Pathways Recommendations

Representatives from Patient Group, Civic Organisation and Industry enter into new collaborative project to improve the management of chronic pain in the EUtl_files/redakteur-bereich/Press/Logo_221_EU Pain Patient Pathways Recommendations.jpg

Brussels / Rome / Aachen, 19 November 2012. Pain Alliance Europe (PAE) representing chronic pain patients in Europe, Active Citizenship Network (ACN) and Grünenthal have entered into an official partnership on the development of European Pain Patient Pathway Recommendations. The projects will run until December 2014 and aims to create a greater awareness of chronic pain and to promote European policy-making for improved management of chronic pain.  

While the political framework of the project is designed by PAE representing the patients’ voice in Europe, ACN will be responsible for the scientific design, methodology and contents. The pharmaceutical company Grünenthal will be responsible for financial and non-financial support. More information is available on the ACN Project Website

15 Sept 2011: EU Parliament Resolution

EU Parliament Resolution on non-communicable diseases

On 15 September 2011 the European Parliament announced their resolution on the European Union position and commitment in advance to the UN high-level meeting on the prevention and control of non-communicable diseases. 

Among others, the EU Parliaments demands: 

N.  whereas the majority of NCDs have common symptoms, such as chronic pain and mental health problems, which directly affect sufferers and their quality of life and should be addressed by means of a common, horizontal approach, so that healthcare systems can tackle these diseases more cost-effectively; 

Here you can find the full EU resolution on non-communicable diseases.

May 2011: SIP - A Road Map for Action

Tackling chronic pain in Europe on policy level

During the 2nd symposium on the "Societal Impact of Pain", which took place in the European Parliament in Brussels on 3-4 May 2011, a "Road Map for Action" was adopted and officially presented to Members of the European Parliament and the EU Commission.

The policy instrument lists seven concrete policy dimensions on how to tackle chronic pain in Europe. It is directed towards the EU institutions, as well as towards governments and decision-makers of EU Member States. More information you can find in the corresponding SIP symposium press release

1. Acknowledgement of pain as an important factor limiting the quality of life;   2. Availability of information and access to pain diagnosis and management; 3. Increased awareness of the medical, financial and social impact that pain and its management have; 4. Increased awareness of the importance of prevention, diagnosis and management of pain; 5. Enforcement of pain research;   6. Establishment an EU platform for the exchange, comparison and benchmarking of best practices; 7. Trend monitoring in pain management by using the EU platform. 

Here you can find the complete Road Map for Action.

Febr 2011: Report on Epidemiology of Chronic Pain in Europe

"Epidemiology of chronic non-cancer pain in Europe"

In February 2011 the report "Epidemiology of chronic non-cancer pain in Europe: narrative review of prevalence, pain treatments and pain impact", written by Kim J. Reid et al, was published as a journal article in Current Medical Research and Opinion. The goal of the report was to obtain epidemiological data about chronic non-cancer pain. This data was obtained using systematic review principles in searching and summarizing results.

CMRO Journal Article

2011: Report on Chronic Non-Malignant Pain in Europe

"Epidemiology of chronic non-malignant pain in Europe"

This report aimed to provide epidemiological information about chronic non-cancer pain in Europe using the most representative, recent, comprehensive and valid studies. Where there was an absence of data on chronic non-cancer pain, studies were used that may have included participants with chronic cancer-related pain.

Full report