European ADPKD Forum (EAF)

  • Multi-Stakeholder Organisation

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About

The European ADPKD Forum (EAF) is a multidisciplinary group of medical and patient group experts dedicated to improving the quality of life of people suffering from ADPKD (Polycystic Kidney Disease - PKD), a progressive and chronic genetic kidney disease. EAF aims to improve ADPKD care and gives recommendations to politicians and other decision makers based on the latest scientific evidence. Furthermore, it supports the communication and co-operation between doctors, researchers, health professionals and patients and promotes relevant educational programmes.