Chronic Pain: making the invisible visible.
European collection of good practices
Project duration: from June to December 2014
The booklet comprises a European collection of good practices of chronic pain management, as recognized by Active Citizenship Network. In particular, the research allows us to give continuity - expanding it with some specificity – to the investigation for good practices in the struggle against pain started by ACN - in co-operation with PAE - in 2012-2013.
The aims of the project are:
To keep attention focused on chronic pain as a health priority locally, nationally, and at the EU level;
To encourage the exchange of experiences between professionals and patients' associations;
To raise awareness among institutions about the need to identify chronic pain as a priority in health policies and programs at EU and national levels;
To create a body of evidence that can be used to support the expansion of programs tailored to the care and treatment of patients with chronic pain;
Raise awareness about the technological advances and their impact of the care and treatment of chronic pain – how the improvement of lives for those with chronic pain.
More information on the project you will find at the ACN Project Website.
Here you will find the complete ACN collection booklet.
Pain Patient Pathway Recommendations
Report Patient's Right to avoid unnecessary suffering and pain in Europe
The Partnership, concisting of PAE (Pain Alliance Europe), ACN (Active Citizenship Network) and Grünenthal held a civic survey with the goal to identify guidelines and recommendations against pain on national and European level, starting from patients' experiences. The civic survey is a first attempt in which a widespread coalition of patients and citizen organizations represents the point of view of patients in the European policies on pain. The first deals primarily with chronic pain and the right not to suffer, the second, more generally, with health policies and the protection of patients.
The political framework of the project is designed by PAE representing the patients’ voice in Europe, ACN will be responsible for the scientific design, methodology and contents. The pharmaceutical company Grünenthal will be responsible for financial and non-financial support.
New brochure Pain Alliance Europe for 2013
Check this new brochure to find out more about chronic pain and about Pain Alliance Europe (PAE), the European umbrella association which brings together 28 national chronic pain associations.
Chronic Diseases in the EU: The Prevalence and Health Cost Implications of Chronic Pain
December 2012. Following the first public presentation of the original systematic literature report on the "Reflection process on chronic diseases in the EU - The role of chronic pain" during SIP 2012, the scientific paper by R. M. Leadley et al. was now accepted and published by the Journal of Pain and Palliative Care Pharmacotherapy. Please follow the link to the journal's website.
New Publication: EPPOSI CCM White Paper
EPPOSI White Paper on a Chronic Conditions Model - chronic pain included!
The independent, not‐for‐profit, partnership-based and multi‐stakeholder think tank EPPOSI just published a White Paper on “Building a Workable Model for the Holistic Management of Chronic Conditions in Europe”.
While EPPOSI has been endorsing the symposia SIP 2011 and SIP 2012, the SIP-Platform and SIP Endorsing Organisations have supported the development of the White Paper during the past two years, including the demand for the recognition of Chronic Pain “… as an essential part of European and national policy-making on chronic conditions and diseases and as a health state to be treated as a disease in its own right.”
Read the full EPPOSI CCM White Paper.
New EU Partnership on Pain Patient Pathways Recommendations
Representatives from Patient Group, Civic Organisation and Industry enter into new collaborative project to improve the management of chronic pain in the EU
Brussels / Rome / Aachen, 19 November 2012. Pain Alliance Europe (PAE) representing chronic pain patients in Europe, Active Citizenship Network (ACN) and Grünenthal have entered into an official partnership on the development of European Pain Patient Pathway Recommendations. The projects will run until December 2014 and aims to create a greater awareness of chronic pain and to promote European policy-making for improved management of chronic pain.
While the political framework of the project is designed by PAE representing the patients’ voice in Europe, ACN will be responsible for the scientific design, methodology and contents. The pharmaceutical company Grünenthal will be responsible for financial and non-financial support. More information is available on the ACN Project Website.
Report on Epidemiology of Chronic Pain in Europe
"Epidemiology of chronic non-cancer pain in Europe"
In February 2011 the report "Epidemiology of chronic non-cancer pain in Europe: narrative review of prevalence, pain treatments and pain impact", written by Kim J. Reid et al, was published as a journal article in Current Medical Research and Opinion. The goal of the report was to obtain epidemiological data about chronic non-cancer pain. This data was obtained using systematic review principles in searching and summarizing results.
Report on Chronic Non-Malignant Pain in Europe
"Epidemiology of chronic non-malignant pain in Europe"
This report aimed to provide epidemiological information about chronic non-cancer pain in Europe using the most representative, recent, comprehensive and valid studies. Where there was an absence of data on chronic non-cancer pain, studies were used that may have included participants with chronic cancer-related pain.