EPPOSI CCM White Paper

EPPOSI White Paper on a Chronic Conditions Model  - soon available!

The independent, not‐for‐profit, partnership-based and multi‐stakeholder think tank EPPOSI just published a White Paper on “Building a Workable Model for the Holistic Management of Chronic Conditions in Europe” and will be available at the upcoming EPPOSI CCM Conference on “An Optimal European Chronic Care Model: Towards Implementation and Benchmarking” (Brussels, December 5th, 2012). 

This White Paper represents the EPPOSI Chronic Conditions Management (CCM) group’s inputs to the development of a workable model for the holistic management of chronic conditions in Europe, taking into consideration medical, socioeconomic and technology dimensions. The primary objective of EPPOSI’s White Paper is to overcome both the existing gaps and obstacles in the management of chronic conditions in Europe and promote initiatives to tackle the alarming situation and impacts of chronic diseases.

While EPPOSI has been endorsing the symposia SIP 2011 and SIP 2012, the SIP-Platform and SIP Endorsing Organisations have supported the development of the White Paper during the past two years, including the demand for the recognition of Chronic Pain “… as an essential part of European and national policy-making on chronic conditions and diseases and as a health state to be treated as a disease in its own right.”

You can read more details at its Executive Summary that is available at the EPPOSI website.

NSW Health Minister Congratulates Painaustralia

The Hon Jillian Skinner MP, NSW Minister for Health and Minister for Medical Research, has formally congratulated "Painaustralia" on its achievements in its first year since formation in February 2011. In a letter to CEO Lesley Brydon, the Minister wrote, "I congratulate the significant achievements identified in Painaustralia's Annual Report which are well aligned with the strategic objectives of the National Pain Strategy."

"The benefit of the work undertaken by Painaustralia to the consumers of health services in NSW is commended. Your organisation [Painaustralia] has improved the profile of pain in the community, particularly in the primary care sector... [and] on a national level", the minister commented. 

"It is always heartening to get positive feedback, and we look forward to continuing to work alongside our members, supporters and stakeholders in order to achieve the objectives of the National Pain Strategy," said Painaustralia.

Please find here the original news message. Please find here the annual report 2011 of Painaustralia.


German Pain Society Announces 26th Pain Research Award 2012

Deadline for submission: 31 May 2012

This year for the 26th time the German Pain Society will hand out the Pain Research Award. With this prize for executing pain research, doctors, psychologists and scientists are encouraged to do work in the field of applied and basic research on acute and chronic pain.

A first as well as a second prize will be handed out in the categories "clinical research" and "basic research". A jury will determine the decide to whom the awards will be handed out. Entries can be received until the 31st of May.

More information about this award, procedures and how to apply can be found here in the Pain Research Award 2012 flyer.

SIP 2012 received endorsement from Italian Presidency of the Council of Ministers

SIP 2012 has officially received the patronage of the Italian Presidency of the Council of Ministers (Presidenza del Consiglio dei Ministri).

Signed by the General Secretary of the Presidency (Segretario Generale Presidenza Consiglio Ministri), the President of the Council of Minister resembles the Italian government, which now has confirmed its endorsement of the scientific aims of the 3rd symposium on the Societal Impact of Pain (SIP 2012). 

Presidenza del Consiglio dei Ministri
Centro Messaggi
Piazza Colonna 370 
00187 Roma
Italy

"6th European Patients’ Rights Day 2012"

Active Citizenship Network is glad to invite you

to attend the European event of the 6th European Patients' Rights Day: " Active Ageing citizens at the center of EU health policy " on the 15-16 of May 2012, in the EESC, Brussels (Van Maerlant Building, Room VM3 - 2nd floor 2, rue Van Maerlant).

The number of ageing citizens is rapidly increasing (Europeans aged 65+ is expected to increase by 45% between 2008 and 2030, and even further to over 30% of the population by 2060) the issues of their access to health care services and the respect of their rights as patients are becoming central and extremely challenging.

The objective of the conference is thus to demonstrate that part of the solution resides in a change of perspective vis-à-vis ageing citizens, from weak patients into "empowered users" of health care services, able to contribute to a better implementation of their rights.

It will be the occasion to bring together a wide range of stakeholders throughout Europe:

to reflect on what is currently being done regarding ageing patients’ rights and to discuss how the involvement of ageing patients/users in citizens’ organisations dealing with health, can contribute to the well-being of the whole community, as well as to a better management of the crisis faced by healthcare services in all EU countries.

The conference would like to contribute, thanks to the collection and sharing of a research on best practices from all EU countries, to the development of public policies for the active involvement of ageing patients in the health policy and to reveal the concrete benefits of this approach.

The aim is to promote a broader alliance between citizens’ and patients’ organisations as well as with other important health care stakeholders, identifying together Recommendations that can be used at European and national level for the active ageing involvement in health policy.

The European conferences will include at least 180 participants among which representatives of the European Institutions, national and/or regional health care departments; national citizens’ and patients’ organizations; European networks; European and national associations of hospitals, doctors and nurses; the health care industry.

As the places available are limited, the registration is needed, please fill in the registration form attached as soon as possible and send it by e-mail to: a.puddu@activecitizenship.net

Please feel free to spread the invitation to your contacts if interested.

Yours sincerely,

Teresa Petrangolini
Director Active Citizenship Network

Contact person: Daniela Quaggia d.quaggia@activecitizenship.net

Chronic Pain Ireland Newsletter - now available!

Chronic Pain in Ireland: The current & future management options

Endorsing organisation Chronic Pain Ireland (CPI) has published their latest newsletter with information on 

• Chronic Pain - Current & Future Management
• GABA puts Brakes on Pain Transmission
• GP - Listening Helps
• Workshops - My personal experience
• Why Self-Management Helps

Read the full Chronic Pain Ireland Newsletter, Edition March 2012. 

Pictures avaialable - PAE website launch in EU Parliament

Official website launch of Pain Alliance Europe (PAE) 
Pan-European alliance for chronic pain patients presents new website in EU Parliament

Invited by Member of European Parliament Jim Higgins (Ireland) the Pain Alliance Europe will officially launch its new website www.pae-eu.eu in the European Parliament on 28 March 2012. The pan-European network of 18 non-governmental organisations from 11 EU countries was officially founded on 29 November 2011. It aims to bring together national and local organisations and patient groups which represent patient interest in addressing the issue of chronic pain at European level.

Already one in every four Europeans is suffering from excruciating pain, 100 million alone in the 27 EU states with half of them not being treated or even taken seriously. Whereas rheumatic, orthopedic and cancer pains are recognized ailments with many groups lobbying for their recognition and proper treatment, chronic pain as a disease is virtually unknown to healthcare professionals and the general public at large.

Please view the pictures and read the full press release PAE website launch


 

PAE website launch in EU Parliament

Official website launch of Pain Alliance Europe (PAE) 
Pan-European alliance for chronic pain patients presents new website in EU Parliament

Invited by Member of European Parliament Jim Higgins (Ireland) the Pain Alliance Europe will officially launch its new website www.pae-eu.eu in the European Parliament on 28 March 2012. The pan-European network of 18 non-governmental organisations from 11 EU countries was officially founded on 29 November 2011. It aims to bring together national and local organisations and patient groups which represent patient interest in addressing the issue of chronic pain at European level.

Already one in every four Europeans is suffering from excruciating pain, 100 million alone in the 27 EU states with half of them not being treated or even taken seriously. Whereas rheumatic, orthopedic and cancer pains are recognized ailments with many groups lobbying for their recognition and proper treatment, chronic pain as a disease is virtually unknown to healthcare professionals and the general public at large.

Please read the full press release PAE website launch. 


 

Dutch Pain Society and Pain Alliance Europe recommend to participate at SIP 2012

Two major organisations representing pain management in the Netherlands recommend to participate at SIP 2012

The Pain Alliance Europe (PAE) unites European organisations for pain patients. The Dutch Pain Society (DPS) is a multidisciplinary association that strives to develop and improve scientific research and the treatment of chronic pain. Representatives of both organizations will be present at the SIP 2012. The joint recommendation from PAE and DPS can be regarded as a real milestone in the collaboration between pain patient and pain physician representatives in the Netherlands. 

Letter of recomendation by PAE and DPS

Become an Endorsing Organisation for SIP 2012

Create awareness for the Societal Impact of Pain

Last year more than 85 international organisations, institutions and patient advocacy groups endorsed the scientific aims of SIP 2011 (Endorsing Organisations SIP 2011). 

This year SIP 2012 will take place in Copenhagen/Denmark on 29-31 May. The SIP 2012 symposium is hosted by the Danish Association for Chronic Pain Patients (FAKS). The scientific framework of SIP 2012 is under the responsibility of the European Federation of IASP® Chapters (EFIC®). The pharmaceutical company Grünenthal GmbH is responsible for funding and non-financial support (e.g. logistical support). 

If you and/or your oganisation would like to become an endorser of the aims of SIP 2012, please contact us.

Launch of Pain Alliance Europe (PAE)

First pan-European Alliance of Pain Patient Advocacy Groups

A historic pan-European organization was launched in the European Parliament in Brussels on 29 November: The newly formed Pain Alliance Europe is a network of 18 NGO’s currently representing 11 European countries and aims to raise awareness for people living under constant pain with neither adequate treatment nor the understanding of what this means to the life quality of the individual.

Under the Chairmanship of Marian Harkin, Irish Member of the European Parliament, as well as in presence of the EU Commission, the group of currently more than 40 members was officially announced, following by the first Alliance meeting where the Board of Directors was elected. Objective of the group is to call on European governments and EU Institutions to put a “Road Map for Action”on the societal impact of pain on their policy agenda.

The full PAE press kit includes a list of members, background material and the press release as Italian, Spanish, German and French version.