SIP Symposium 2014 - November 17-18th

 

The EU council under the Italian Presidency to prioritize Pain and Palliative Care in 2014!

Four interactive panel discussions involving key stakeholders in Europe will define what needs to be done now to ensure that chronic pain and palliative care become long term EU and National Health priorities as well !

The SIP programme committee announced earlier this year that SIP symposium 2014 will be hosted on November 18th . The decision to move the annual SIP event to the second semester this year is due to the exciting news that the Italian department of European Affairs announced that it intends to list pain therapy and palliative care as priorities to be addressed during their presidency of the EU council . This means that for the first time ever during the Italian Presidency of the EU Council all EU Health Ministers will be discussing the societal burden of Chronic Pain and Palliative Care and will be debating how to address this priority in the years to come.

Here you can find the link to the official document where it is stated on page 100 ( translated from Italian) : During the Presidency semester the themes of pain therapy and palliative care will be tackled: topical issues thanks to the progresses in medicine and on which our country wants to share its own experience with other member states.

Considering the importance of this announcement it was also decided to celebrate the 5th SIP symposium by inviting Nick Ross, one of the most renowned European journalists and scientific moderators to lead four interactive panel discussions. Nick Ross has a long interest and involvement with healthcare policy and an interest in pain management ( you can find a brief CV below* and here a link to his website)

Therefore policy makers and those who influence EU Health Policy i.e. politicians , insurers , economists , patient advocates , industry , journalists and all other key stakeholders are invited to join an intense and exiting debate to define what needs to be done now to ensure that chronic pain and palliative care will become an EU and National Health Policy priority also in the long term.

If you would like to attend the SIP 2014 Symposium on Tuesday November 18th in the SQUARE - Brussels Meeting Centre you may register via this link : Please note that this is the link for the 'open registration' and that you would need to make own arrangements for hotel and transport. Due to limited seating capacity the organisers can only accommodate a limited number of non-invited guests to participate in the symposium and it is recommended that you register your interest to attend early. On the day of the event you will be able to participate in the two refreshment breaks and the lunch that will be provided.

 

Please also join the discussion on the  SIP Group on LinkedIn !

 

* Nick Ross : Chairman Wales Cancer Bank, President of HealthWatch (UK charity promoting evidence-based medicine), trustee Sense About Science (promotes scientific literacy), Chairman Evidence Matters (promotes evidence-based public policy), trustee UK Stem Cell Foundation (funds stem cell research), Fellow Royal Society of Medicine, Visiting Professor and Honorary Fellow UCL, adviser London Health Review, patron various health charities, etc. Former member: UK Gene Therapy Advisory Committee, Nuffield Council on Bioethics, Royal College of Physicians Committee on Ethical Issues in Medicine, NHS Review Team, Academy of Medical Sciences Review of Non-Human Primate Use in Medical Research, etc

 

 

EPPOSI CCM White Paper

EPPOSI White Paper on a Chronic Conditions Model  - soon available!

The independent, not‐for‐profit, partnership-based and multi‐stakeholder think tank EPPOSI just published a White Paper on “Building a Workable Model for the Holistic Management of Chronic Conditions in Europe” and will be available at the upcoming EPPOSI CCM Conference on “An Optimal European Chronic Care Model: Towards Implementation and Benchmarking” (Brussels, December 5th, 2012). 

This White Paper represents the EPPOSI Chronic Conditions Management (CCM) group’s inputs to the development of a workable model for the holistic management of chronic conditions in Europe, taking into consideration medical, socioeconomic and technology dimensions. The primary objective of EPPOSI’s White Paper is to overcome both the existing gaps and obstacles in the management of chronic conditions in Europe and promote initiatives to tackle the alarming situation and impacts of chronic diseases.

While EPPOSI has been endorsing the symposia SIP 2011 and SIP 2012, the SIP-Platform and SIP Endorsing Organisations have supported the development of the White Paper during the past two years, including the demand for the recognition of Chronic Pain “… as an essential part of European and national policy-making on chronic conditions and diseases and as a health state to be treated as a disease in its own right.”

You can read more details at its Executive Summary that is available at the EPPOSI website.

NSW Health Minister Congratulates Painaustralia

The Hon Jillian Skinner MP, NSW Minister for Health and Minister for Medical Research, has formally congratulated "Painaustralia" on its achievements in its first year since formation in February 2011. In a letter to CEO Lesley Brydon, the Minister wrote, "I congratulate the significant achievements identified in Painaustralia's Annual Report which are well aligned with the strategic objectives of the National Pain Strategy."

"The benefit of the work undertaken by Painaustralia to the consumers of health services in NSW is commended. Your organisation [Painaustralia] has improved the profile of pain in the community, particularly in the primary care sector... [and] on a national level", the minister commented. 

"It is always heartening to get positive feedback, and we look forward to continuing to work alongside our members, supporters and stakeholders in order to achieve the objectives of the National Pain Strategy," said Painaustralia.

Please find here the original news message. Please find here the annual report 2011 of Painaustralia.


German Pain Society Announces 26th Pain Research Award 2012

Deadline for submission: 31 May 2012

This year for the 26th time the German Pain Society will hand out the Pain Research Award. With this prize for executing pain research, doctors, psychologists and scientists are encouraged to do work in the field of applied and basic research on acute and chronic pain.

A first as well as a second prize will be handed out in the categories "clinical research" and "basic research". A jury will determine the decide to whom the awards will be handed out. Entries can be received until the 31st of May.

More information about this award, procedures and how to apply can be found here in the Pain Research Award 2012 flyer.

SIP 2012 received endorsement from Italian Presidency of the Council of Ministers

SIP 2012 has officially received the patronage of the Italian Presidency of the Council of Ministers (Presidenza del Consiglio dei Ministri).

Signed by the General Secretary of the Presidency (Segretario Generale Presidenza Consiglio Ministri), the President of the Council of Minister resembles the Italian government, which now has confirmed its endorsement of the scientific aims of the 3rd symposium on the Societal Impact of Pain (SIP 2012). 

Presidenza del Consiglio dei Ministri
Centro Messaggi
Piazza Colonna 370 
00187 Roma
Italy

"6th European Patients’ Rights Day 2012"

Active Citizenship Network is glad to invite you

to attend the European event of the 6th European Patients' Rights Day: " Active Ageing citizens at the center of EU health policy " on the 15-16 of May 2012, in the EESC, Brussels (Van Maerlant Building, Room VM3 - 2nd floor 2, rue Van Maerlant).

The number of ageing citizens is rapidly increasing (Europeans aged 65+ is expected to increase by 45% between 2008 and 2030, and even further to over 30% of the population by 2060) the issues of their access to health care services and the respect of their rights as patients are becoming central and extremely challenging.

The objective of the conference is thus to demonstrate that part of the solution resides in a change of perspective vis-à-vis ageing citizens, from weak patients into "empowered users" of health care services, able to contribute to a better implementation of their rights.

It will be the occasion to bring together a wide range of stakeholders throughout Europe:

to reflect on what is currently being done regarding ageing patients’ rights and to discuss how the involvement of ageing patients/users in citizens’ organisations dealing with health, can contribute to the well-being of the whole community, as well as to a better management of the crisis faced by healthcare services in all EU countries.

The conference would like to contribute, thanks to the collection and sharing of a research on best practices from all EU countries, to the development of public policies for the active involvement of ageing patients in the health policy and to reveal the concrete benefits of this approach.

The aim is to promote a broader alliance between citizens’ and patients’ organisations as well as with other important health care stakeholders, identifying together Recommendations that can be used at European and national level for the active ageing involvement in health policy.

The European conferences will include at least 180 participants among which representatives of the European Institutions, national and/or regional health care departments; national citizens’ and patients’ organizations; European networks; European and national associations of hospitals, doctors and nurses; the health care industry.

As the places available are limited, the registration is needed, please fill in the registration form attached as soon as possible and send it by e-mail to: a.puddu@activecitizenship.net

Please feel free to spread the invitation to your contacts if interested.

Yours sincerely,

Teresa Petrangolini
Director Active Citizenship Network

Contact person: Daniela Quaggia d.quaggia@activecitizenship.net

Chronic Pain Ireland Newsletter - now available!

Chronic Pain in Ireland: The current & future management options

Endorsing organisation Chronic Pain Ireland (CPI) has published their latest newsletter with information on 

• Chronic Pain - Current & Future Management
• GABA puts Brakes on Pain Transmission
• GP - Listening Helps
• Workshops - My personal experience
• Why Self-Management Helps

Read the full Chronic Pain Ireland Newsletter, Edition March 2012. 

Pictures avaialable - PAE website launch in EU Parliament

Official website launch of Pain Alliance Europe (PAE) 
Pan-European alliance for chronic pain patients presents new website in EU Parliament

Invited by Member of European Parliament Jim Higgins (Ireland) the Pain Alliance Europe will officially launch its new website www.pae-eu.eu in the European Parliament on 28 March 2012. The pan-European network of 18 non-governmental organisations from 11 EU countries was officially founded on 29 November 2011. It aims to bring together national and local organisations and patient groups which represent patient interest in addressing the issue of chronic pain at European level.

Already one in every four Europeans is suffering from excruciating pain, 100 million alone in the 27 EU states with half of them not being treated or even taken seriously. Whereas rheumatic, orthopedic and cancer pains are recognized ailments with many groups lobbying for their recognition and proper treatment, chronic pain as a disease is virtually unknown to healthcare professionals and the general public at large.

Please view the pictures and read the full press release PAE website launch


 

PAE website launch in EU Parliament

Official website launch of Pain Alliance Europe (PAE) 
Pan-European alliance for chronic pain patients presents new website in EU Parliament

Invited by Member of European Parliament Jim Higgins (Ireland) the Pain Alliance Europe will officially launch its new website www.pae-eu.eu in the European Parliament on 28 March 2012. The pan-European network of 18 non-governmental organisations from 11 EU countries was officially founded on 29 November 2011. It aims to bring together national and local organisations and patient groups which represent patient interest in addressing the issue of chronic pain at European level.

Already one in every four Europeans is suffering from excruciating pain, 100 million alone in the 27 EU states with half of them not being treated or even taken seriously. Whereas rheumatic, orthopedic and cancer pains are recognized ailments with many groups lobbying for their recognition and proper treatment, chronic pain as a disease is virtually unknown to healthcare professionals and the general public at large.

Please read the full press release PAE website launch. 


 

Dutch Pain Society and Pain Alliance Europe recommend to participate at SIP 2012

Two major organisations representing pain management in the Netherlands recommend to participate at SIP 2012

The Pain Alliance Europe (PAE) unites European organisations for pain patients. The Dutch Pain Society (DPS) is a multidisciplinary association that strives to develop and improve scientific research and the treatment of chronic pain. Representatives of both organizations will be present at the SIP 2012. The joint recommendation from PAE and DPS can be regarded as a real milestone in the collaboration between pain patient and pain physician representatives in the Netherlands. 

Letter of recomendation by PAE and DPS

Become an Endorsing Organisation for SIP 2012

Create awareness for the Societal Impact of Pain

Last year more than 85 international organisations, institutions and patient advocacy groups endorsed the scientific aims of SIP 2011 (Endorsing Organisations SIP 2011). 

This year SIP 2012 will take place in Copenhagen/Denmark on 29-31 May. The SIP 2012 symposium is hosted by the Danish Association for Chronic Pain Patients (FAKS). The scientific framework of SIP 2012 is under the responsibility of the European Federation of IASP® Chapters (EFIC®). The pharmaceutical company Grünenthal GmbH is responsible for funding and non-financial support (e.g. logistical support). 

If you and/or your oganisation would like to become an endorser of the aims of SIP 2012, please contact us.

Launch of Pain Alliance Europe (PAE)

First pan-European Alliance of Pain Patient Advocacy Groups

A historic pan-European organization was launched in the European Parliament in Brussels on 29 November: The newly formed Pain Alliance Europe is a network of 18 NGO’s currently representing 11 European countries and aims to raise awareness for people living under constant pain with neither adequate treatment nor the understanding of what this means to the life quality of the individual.

Under the Chairmanship of Marian Harkin, Irish Member of the European Parliament, as well as in presence of the EU Commission, the group of currently more than 40 members was officially announced, following by the first Alliance meeting where the Board of Directors was elected. Objective of the group is to call on European governments and EU Institutions to put a “Road Map for Action”on the societal impact of pain on their policy agenda.

The full PAE press kit includes a list of members, background material and the press release as Italian, Spanish, German and French version.